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The Mission of the Coalition for Hemophilia B aims to make quality of life the focal point of treatment for individuals with hemophilia B in the 21st century.
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
The Coalition for Hemophilia B is guided by a board composed of researchers, doctors, lawyers, parents and patients. The outreach to the medical community is handled through a small Scientific Advisory Board. The Coalition is supported by a gift from Joyce and John Taylor and accepts gifts from corporate and individual donors. The commitment of the Coalition is to continue to instigate and support scientific research, product development, patient information and advocacy is ongoing.
BScene Video featuring Marie Ferrel Posted Jul 30, 2015 By factor9
Factor Nine News Spring 2015 Posted Jul 07, 2015 By factor9
Coalition for Hemophilia B’s Annual Women’s Retreat Posted Jul 04, 2015 By factor9
The Coalition for Hemophilia BScene Posted Jun 27, 2015 By factor9
Third Annual Men’s Retreat Posted Jun 26, 2015 By factor9