The Mission of the Coalition for Hemophilia B aims to make quality of life the focal point of treatment for individuals with hemophilia B in the 21st century.
The Coalition for Hemophilia B was founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B. Formed as a way of providing information about treatment options to patients and their families, as well as instigating and funding research and product development, the Coalition provides information about treatment that will improve quality of life, works to define new treatment modalities, and support efforts to eliminate the disease.
The Coalition for Hemophilia B is guided by a board composed of researchers, doctors, lawyers, parents and patients. The outreach to the medical community is handled through a small Scientific Advisory Board. The Coalition is supported by a gift from Joyce and John Taylor and accepts gifts from corporate and individual donors. The commitment of the Coalition is to continue to instigate and support scientific research, product development, patient information and advocacy is ongoing.
We are dreaming of a world with a treatment we can all afford.
Monitoring and Supporting Research
Empowering people with hemophilia and their families to act as advocates on their own behalf
To make quality of life the focal point of treatment for individuals with hemophilia in the 21st century
To ensure they have timely information in regard to their healthcare
Hemophilia B Educational Retreats created by people with Hemophilia B For People with Hemophilia B
Patient Assistance Programs and Scholarships
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