The Coalition for Hemophilia B

The William N. Drohan Scholarship was formed in memory of Dr. William N. Drohan who passed away in March of 2007. Dr. Drohan was a well-known microbiologist and educator who will long be remembered for his many contributions to science. He was a pioneer in using molecular biology to produce recombinant proteins and a visionary scientist who dedicated his life to improving the safety of blood and blood products. Other important contributions include investigating prion diseases in the blood supply, and his development of novel ways to treat traumatic injuries including fibrin-sealant bandages to stem hemorrhage.

Dr. Drohan was equally dedicated to scientific research and to mentoring students and young scientists. His career included important positions with the National Cancer Institute, the American Red Cross, and private companies dedicated to treating blood borne disorders, most recently as Chief Scientific Officer of STB, Ltd., as well as Chief Scientific Officer at Inspiration Biopharmaceuticals, Inc., and previously Chief Scientific Officer of Clearant, Inc. He was also a very involved Board Member of The Coalition for Hemophilia B. His passion, drive, and vision were instrumental in the formation of the Coalition when it began in the early 1990s. He also served as Professor in the Graduate Program of the Department of Genetics of George Washington University and formerly as Adjunct Professor in the Department of Chemical and Biochemical Engineering of the University of Maryland. Dr. Drohan published more than 145 scientific papers and held 30 U.S. patents. He served on the editorial boards of several scientific journals. In addition, was a member of the Scientific Steering Committee for Blood Products at the Walter Reed Army Institute of Research and the Chairman for the Panel on Biotechnology of the National Research Council.

Bill’s professional and personal enthusiasm was always a great motivation for many people who were fortunate to have had the opportunity to work with him. Many young scientists will remember him for his altruistic mentoring role. In addition to his passion for science and business, he leaves to all of us a legacy of scientific achievement and inspirational leadership that was accompanied by an extraordinary level of kindness and generosity.

This fund was created for children of scientists, doctors, nurses, pharmacists and bleeding disorder healthcare professionals who are part of the comprehensive care team, who have a need for funds, especially those who have lost their father or mother.

If you have any questions regarding this application, please call Kim Phelan at 917-582-9077

Regards,

David B. Clark, Ph.D.

williamndrohanscholarship2012 r2

Save the Date!

factor9 — Wed, 11 Jan 2012 14:58:03 +0000

Save the Date!

The Coalition for Hemophilia B

5th Annual Fundraising Dinner
Friday, March 16, 2012

Hemo B Save the Date! 2012

2012 March 16 B Invitation

Spring/Summer 2011 – Factor Nine News

admin — Fri, 16 Sep 2011 01:40:26 +0000

TOPICS IN HEMOPHILIA

CHB 4th Annual Fundraising Dinner
CHB 5th Annual Symposium
Symposium Attendee Comments
Importance of Pharmacokinetics in Prophylactic Treatment of Hemophilia B
A Mom’s Perspective on Schooling for her Twin Boys with Hemophilia B
Wayne & Kelly Cook Wedding
New Treatments for Hepatitis C
It Takes a Village
New York ER Visit Recap
First Account of Hemophilia in America
Dealing with an Inhibitor
Christmas in July!
Save the Date!

Download the full Newsletter (PDF)

Eshton Scott Hewitt

admin — Fri, 29 Apr 2011 01:28:39 +0000

Eshton Scott Hewitt

Dec 1, 1994 – April 6, 2011

Eshton Scott Hewitt of Genesee, Michigan, age 16, died Wednesday, April 6, 2011 at University Hospitals in Ann Arbor, Michigan. Eshton was born in Flint, Michigan on December 1, 1994, the son of Jay and Joyce (Webster) Hewitt.Eshton was a Sophomore at Genesee High School. He touched and influenced more people in his short 16 years of life than most people do in a lifetime. He touched everyone’s heart that met him. He fought a good fight.

Surviving are parents, Jay and Joyce; twin brother, Tekoa; cousins, “Big brother”, Ryan and “brother” Joe; Nannie, Gra-Gra, Grandpa, Grandpa Ray, Grandma Naomi, Papa, Grandma Jeaninne; several aunts, uncles, cousins and many special friends.He was preceded in death by Grandpa Sam and second cousin, Alleigh.

Your condolences may be shared with the family at swartzfuneralhomeinc.com. In Eshton’s memory the family is requesting people to become organ donors; if already an organ donor, contributions may be made to Eshton Hewitt Quality of Life Memorial Fund thru the Coalition for Hemophilia B.

All men have stars, but they are not the same things for different people.

For some, who are travelers, the stars are guides.

For others they are no more than little lights in the sky.

For others, who are scholars, they are problems…

But all these stars are silent.

You-You alone will have stars as no one else has them…

In one of the stars I shall be living. In one of them I shall be laughing.

And so it will be as if all the stars will be laughing

When you look at the sky at night…

You, only you, will have stars that can laugh!

And when your sorrow is comforted (time soothes all sorrows)

You will be content that you have known me…

You will always be my friend. You will want to laugh with me.

And you will sometimes open your window, so for that pleasure…

It will be as if, in place of the stars, I had given you a great number

of little bells that knew how to laugh.

~ The Little Prince by Antoine de Saint-Exupery

We will miss Eshton dearly. He will always be in our hearts and our stars.

The Coalition for Hemophilia B – Kim, Dave & Wayne

Please make donations payable to

The Coalition for Hemophilia B

The Eshton Hewitt Quality of Life Memorial Fund

825 Third Avenue, 2nd Floor; New York, New York 10022

Website: www.coaltionforhemophiliab.org

Call or E-mail Kim Phelan at 212-520-8272

or hemob@ix.netcom.com

Winter 2010 – Factor Nine News

admin — Fri, 29 Apr 2011 01:13:40 +0000

TOPICS IN HEMOPHILIA

New York Constituents Walk the Hill
My Son Logan
Life as a Young Woman with a Bleeding Disorder
One Mom’s View On Having Her Daughters Tested for Hemophilia
Product Safety – When is Clotting Factor Safe Enough?
The Importance of Adherence for Prophylaxis
Industry News
Community News
Save the Date!

Download the full Newsletter (PDF)