• CHB Third Annual Fundraising Dinner
• CHB Fourth Annual Symposium
• Pfizer Lifelines Ambassador Program
• Gene Therapy Update
• In Memory of Jim Brown
• Inalex Communications
• Grifols
• Washington Days
• Hemophilia Alliance Foundation
• HFA in Kansas City, Missouri
• Upcoming Events

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Five $4,000 graduate scholarships

Twelve $2,500 undergraduate college scholarships

To be eligible for the scholarships, students must have either hemophilia A or hemophilia B and be a high school senior, have a high school diploma or graduate equivalency diploma (GED), or be currently enrolled in an accredited junior college, college (undergraduate or graduate), or vocational school.

You can download and print a scholarship application form for the 2010-2011 academic year here.

In 2000, the program was renamed the Soozie Courter “Sharing a Brighter Tomorrow” Hemophilia Scholarship Program to recognize Soozie Courter, a valued and respected friend of the hemophilia community who passed away in 1999.

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• Save the Dates!
• Social Aspects of Hemophilia Carrier Detection and Education
• Age 29” Dependent Coverage Extension
• William N. Drohan Scholarship Award Announcement
• We remember Maureen Cook
• Industry News
• Mystery of the Missing Sea Lions

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• FIX Family Meeting, NHF San Francisco
• Dolphin Mystery
• A Sense of Community
• Another Approach to Increasing the Half-Life of Factor IX
• Case Closed: Famous Royals Suffered from Hemophilia
• The Hemophilia Alliance Foundation
• A Farewell to Maureen Cook
• Save the Date! CHB Dinner and Symposium

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  26 March 2010 @ Broadway Millennium Hotel - New York City

Below are the Dinner Invitation and the Reservation Card for the event.

Dinner Invitation

Reservation Card

Note: If you are not able to attend the Fund-raising Dinner we welcome you to attend CASINO Night after dinner from 7:30-11:00 pm on the 8th floor.

If you are attending CASINO NIGHT please contact Kim Phelan hemob@ix.netcom.com to confirm.

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27 March 2010 @ Millennium Broadway Hotel - New York City

Below are the Agenda, Speaker Bios, Registration Forms and Exhibitor Agreement for the event.

Agenda

Speaker Bios

Basic Information

Symposium Registration Form

 Babysitting Form

Exhibitor Agreement

(Montreal, December 2, 2009): As part of its continued commitment to hemophilia care around the world, Wyeth, now a part of Pfizer, has pledged more than  40 million international units (IUs) of factor concentrates to the World Federation of Hemophilia (WFH). This is the largest donation ever made to the WFH’s Humanitarian Aid Program, and will make a significant impact to advance the WFH’s goals.

“This donation will directly support building sustainable national care programs for people with bleeding disorders,” said Mark Skinner, WFH president. “We are very proud to work with Wyeth, which has historically been the largest single donor of hemophilia products to the WFH.”

The donation will bring life-saving treatment to many people with hemophilia around the world who would not otherwise have access to adequate treatment. Notably, participants of the WFH Twinning Program will receive some of the donated product which will help improve their quality of life. It will also support adults and young children who have no access to treatment and patients with life-threatening bleeding episodes.

“We are committed to working with partner organizations to provide access to hemophilia medicines to patients who need them,” said Geno Germano, president and general manager of the Specialty Care Business Unit at Pfizer.

This donation and Wyeth’s ongoing commitment will continue to strengthen the WFH’s Humanitarian Aid program and will help provide those in need with valuable and life-saving medicines.

About hemophilia and other bleeding disorders
One in 5,000 boys is born with hemophilia.  This means that their blood does not clot properly and this can often be fatal due to internal bleeding.  However, with proper care and management, patients with hemophilia and bleeding disorders can lead a longer, healthier life.

Hemophilia, von Willebrand disease, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not working. People with hemophilia can experience uncontrolled internal bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability. Bleeding into major organs, such as the brain, can cause death.

About the World Federation of Hemophilia (WFH)
The World Federation of Hemophilia (WFH) is an international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders. Established in 1963, it is a global network of patient organizations in 113 countries and has official recognition from the World Health Organization. Visit WFH online at www.wfh.org.

For more information contact:
SARAH FORD
1 514 394 2822
sford@wfh.org
www.wfh.org

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